Lieber Daniel: Briefe an meinen Sohn (German Edition)

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Stay up to date with The Business Times for. Get the latest news and information from BT newsletters for free:. Genting to launch world's biggest cruise liners in Singapore from Genting theme park plans 'all in place', slated to open in early When he died, I asked Mom what the cause of death had been.

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She was pretty sure it was because there was no one left he wanted to irritate. Along with our given name and our hemophilia, he and I seemed to share many personality traits, which has been the subject of many comments and some trepidation in my family.

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The other man was Mr. He was in his late 50s or early 60s when my family first met him. He was a quiet, gentle man with a sly wit.

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He was also, as far as I can remember, the only adult with hemophilia to attend the monthly association meetings. All the other adults at the meetings were the parents of boys with hemophilia, physicians, or Mr. The one personality trait Mr. C shared with Granddad was a firm belief that he could, and would, survive. That, and they were both bald. The development of the modern factors in the early s coincided nicely with the first wave of baby boomer hemophiliacs coming of age.

The problems with HIV infections in the s thinned the ranks, but for the first time, there is a relatively large and growing population of adult men with bleeding disorders. For the first time, we are having to take a serious look at the issues of a relatively large population of aging bleeders.

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Health issues are the first ones we think of, or at least the first ones I think of. Do we know if bleeding patterns change as we get older?

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When I was a kid, the majority of my bleeds were in joints, but for the past 20 years or so, there has been a marked shift toward abdominal, kidney and other soft tissue hemorrhages. Is this a typical pattern, or am I an anomaly? My wife is nodding her head. In addition to the strictly medical concerns, we have to consider a host of fiscal and social issues. Speaking from experience, I can assure you that the average retirement plan may not be adequate to our needs, but what can we do to ensure we have enough to live in comfort and dignity and provide proper medical care?

Every person, regardless of preexisting conditions, has that problem, but it is a bit more pronounced for those of us with hemophilia , von Willebrand disease and other bleeding disorders. Buying a SuperDuper Lotto ticket each week, while perhaps fun, is a bit thin as far as reliability is concerned. Then there are those interpersonal things. And if you and your partner can somehow maintain a strong relationship, you still have to deal with how your bleeding disorder affects the offspring.